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Young Girl With Rare Bone Disease Stays Encouraged

Posted at 8:06 PM, Aug 05, 2018
and last updated 2018-08-05 23:25:23-04

A little Tennessee girl living with a rare genetic bone disease has a message for other people going through difficult times.​​

Kaylee Fisher, age 9, has Osteochondromatosis and Chondrosarcoma which cause tumors to grow throughout her body.

Currently, she has tumors in her legs, making it hard and painful for her to walk.

In July, her wheelchair was stolen, which made it difficult for her to get around. That same day, she was hit by a vehicle causing tumors to rupture.

The accident has brought the east Tennessee girl to Nashville where doctors will remove tumors from her ribs and legs on Monday.

"I am okay with it if it helps," she said.

In addition to surgery, Kaylee's insurance company won't pay for a wheelchair, so her mom is waiting to come up with $2,400.

"I know whatever she goes through this is only going to make her stronger, and right now, she is Wonder Woman," Kaylee's mother, Samantha Gibson, said.

Kaylee said she tries to live a normal life, but living with the disease can be challenging.

"You think a girl in a wheelchair would have very many friends, but I am bullied all the time at my school so I don't really have any friends," she said.

Her message to other Wonder Women fighting their own battles?

"Stay strong. That's what people tell me," she said.

If you would like to send Kaylee a card or encouraging letter, you can mail that to:

      1006 Smoky Crossing Way
      Seymour, TN 37865

A Facebook page detailing Kaylee’s journey can be found here.